Some days are better than others. Today has been a mixture of both. I made a new friend on Facebook. She seems to have had some similar problems I am now having, but her case is much worse. It was good to connect with someone who truly understands what I am going through. I have a very supportive husband and children. There are also some of my friends and family that are supportive. But no one can truly understand what a Cushie goes through except another Cushie. I am glad that no one else can understand this because it is not fun. It is very painful.
I have 16 days until my surgery. I am both excited and nervous for this to happen. I am slowly getting things lined up so everything is in order. I know this is going to still be a long road, I just want to be on the recovery side of this. I have been fighting for this diagnosis and surgery for nearly two years now. It was strange to realize that a couple of weeks ago. I had went to St. Louis for my pre-op visit and they said something about me having these symptoms for two years. I corrected them, but then thought about it and realized they were correct. It just seems like such a long time now.
I use a wheelchair to get around my house now most days. I am too tired and it takes too much energy to walk. My body is stiff and my limbs just won't cooperate. I am too prone to panic attacks when I go out in public so I don't go out anymore. I only go out for doctors appointments and that is very hard and stressful on me. My husband and I took the kids to the Omaha Zoo a couple of weekends ago and that did it for me. I had panic attack at zoo and many more on the way home. I cannot do that anymore. Have to wait until I can get this all under control. I am missing my two smallest children's Open House tonight at school because of this. It is too stressful. My speech is screwed up and I can't be understood when I speak. I hate what Cushing's is doing to me. I want to be a whole, functioning person again.
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